From the Editor… It took almost four months, two dermatologists, and six days in a hospital bed, to be “officially” diagnosed with pityriasis rubra pilaris. It took only four more days for me to conclude that I had embarked on a three to five-year journey that would ultimately end with remission. Fortunately, my journey lasted only 20 […]
What Does Remission Really Mean? Read More »
Editor’s Note Whether you are a newcomer or a seasoned traveler, the more you know about pityriasis rubra pilaris, the better prepared you will be for the journey ahead. The following information has been developed to enlighten PRP patients and their caregivers, family and friends, teachers and school administrators, and employers and co-workers. This information may also enlighten dermatologists and
New Members — Getting a Good Start Read More »
From the editor… Every so often I lament the fact that after (or in spite of) six years I have been unable to create or inspire a community of PRP parents within the PRP Facebook Community. That doesn’t stop me from raising the issue again in hopes that a Coalition of PRP Parents & Kids
Coalition of PRP Parents & Kids Read More »
Here’s something that dermatologists are unlikely to share with a newly diagnosed PRP patient: “The combination of topical ointments, cream, and lotions you will be prescribed and the relentless shedding of skin, will put an extraordinary mental and physical strain on you, caregivers, and push your washing machine to its mechanical limits. For many, the challenges of
Laundry — A Daily Challenge of Spirit Read More »