March 2021

. Before we look ahead — let’s look back. The PRP Community (circa. May, 2013) by Bill McCue, PRP Patient Advocate In May, 2013  I was nine months into my PRP journey with another 11 months to go. What was your PRP status eight years ago? ✽  Back in May 2013 there was no PRP patient database. Today we have

. Our Purpose The purpose of the PRP COVID-19 Global Vaccination Survey is to officially document the following: A.   How many PRP patients have taken or expect take when available any of the currently “approved” COVID-19 vaccines? , B,   How many PRP patients do not expect to take any of the currently “approved” COVID-19 vaccines? , C.

. The TEXT of the COVID-19 PRP Global Vaccination Survey is posted here for PRP patients and caregivers for translation purposes only. The purpose of the PRP COVID-19 Global Vaccination Survey is to officially document the following: A.   How many PRP patients have taken or expect take when available any of the currently “approved” COVID-19 vaccines?

  Thank you for sharing, Detailed results or the COVID-19 PRP Global Vaccination Survey will be shared via email with the patients and caregivers who have completed the survey. Summaries will be posted for review by all members of the PRP Facebook Support Group, If you have any questions, please email me. bill.mccue@prpSurvivalGuide.org

. IF YOU ANSWERED YES Whether you are the PRP patient, a caregiver/carer, or supporter of a PRP patient, thank you for sharing your willingness to COMPLETE the PRP Onset to Diagnosis Retrospective Survey. Since December 2020, I have processed nearly 700 surveys. Nearly 100 were either blank or have been previously submitted by PRP patients/caregivers. I will be emailing

There Once Was a Man Named Rose On March 2, 2021, Murray Rose (Surrey, British Columbia, Canada),  unintentionally put my Muse in motion resulting in the world’s first — and perhaps last — PRP limerick contest. Thanks you to everyone who put pen to paper (or fingertips to keyboard. There once was a man named Rose,

We are Not Alone Bill McCue x It was a Saturday morning in April 2016 when I realized that too many of my PRP friends in the Land of Chat were suffering too much pain, e.g., Ginny M, Deborah B, Jesper J, Bill F, and two now departed: Tierney R and Bab P, The house was empty and