From the Editors: During the summer of 2013, a total of 487 PRP patients were polled by email and given an opportunity to participate in a first-of-its-kind PRP Biopsy Poll. Remarkably, within a 3-week period, a total of 256 invitees (52.6%) shared their biopsy experiences and/or recollections.The primary objective of the PRP Biopsy Poll was to better understand […]
PRP Alliance to Update 2013 Biopsy Poll Read More »
From the Editors: The PRP Community Database currently tracks 1,622 PRP patients who are now members of the PRP Facebook and/or RareConnect Communities, or are unaligned but have a valid email address. The 2017 PRP Worldwide Census begins today with a simple goal: confirm the data we have and add data we are missing.
1,621 Invited to Share PRP “Core” Data Read More »
Thank you for sharing your information. Bill McCue, Founder/President PRP Alliance, Inc.
Thank You For Being Counted Read More »
Let’s start with a little history. When James Shooter was admitted to St. Bartholomew’s Hospital in London, England in 1828, he unwittingly became the world’s first recorded patient with what the medical community would eventually call pityriasis rubra pilaris. Fast forward 169 years. The PRP community has only been around since late 1997 when a
Objective To better understand the role played by dermatologists and dermatopathologists in the diagnosis of PRP. Problem to be addressed While some PRP patients enjoy a relatively quick diagnosis of PRP, many of us have had to suffer through a differential diagnosis that preceded the “official” PRP diagnosis. During that time either the wrong treatment
Diagnosing PRP Survey Read More »
ACKNOWLEDGMENT NORD gratefully acknowledges the following for their assistance in preparing this report: Mark Lebwolh MD, Chairman, Dermatology Department, Icahn Medical School, Mount Sinai Hospital, New York, NY; Jouni Uitto MD, PhD Professor and Chair, Department of Dermatology and Cutaneous Biology. Thomas Jefferson University, Philadelphia, PA; Nicholas A Ross, MD, Lead Investigator and Resident Physician,
Pityriasis Rubra Pilaris Draft for NORD Read More »
From the Editor… My first PRP Awareness Day was November 28, 2012 and quite “unofficial” by any standards. It began with a phone call from my dermatologist’s office. I was told that the appearance of a red spot on my forehead on August 8 — nearly four months prior — had been the onset of pityriasis rubra pilaris. Like
PRP Awareness Month Read More »
There is no excerpt because this is a protected post.
Protected: PRP and Dermatopathology — A Tutorial Read More »
From the Editor… As a new member of the PRP Facebook Support Group — Steve B (Cambridge, England, UK) had observed that the onset of PRP seemed to occur more frequently during the months of February to May. While Steve’s conclusion was based on the comments of a few, perhaps the PRP Community Database could shed some
PRP Onset by Month Read More »
From the Editor… When the clinical observations of a dermatologist are supported by a biopsy prepared by a dermatopathologist, a diagnosis of pityriasis rubra pilaris is rendered and the diagnostic code L44.0 entered into the patient’s medical record. The International Classification of Diseases (ICD) is an essential element in every medical record. The ICD code is important for health insurance reimbursement, administration, epidemiology (the
PRP and Diagnostic Coding Read More »