PRP Alliance

PRP Alliance

PRP Research

Phases of Clinical Research

From the Editor… To our knowledge, no clinical trials are currently underway regarding pityriasis rubra pilaris and any pharmaceutical in the pipeline. However, there is ongoing clinical and genetic research at Thomas Jefferson UnIversity. We need to foster more research. Perhaps the PRP community could ask PRP-savvy dermatologists to consider independent, case studies regarding the efficacy of

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In search of PRP Patients

06.01.06  In search of PRP Patients There are an estimated 800 Americans with PRP. Unfortunately, we have only been able to identify 188 (23.5%) who are currently “active”. This is simply unacceptable. While the number of patients served by dermatology patient organizations for psoriasis and eczema is measured in the millions, we measure the PRP

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What is a Patient Registry?

06.01.04  Patient registry? Source: EveryLife Foundation, Community Congress, Webinar, Sanford Research Clinical Development for Rare Diseases: A Primer for Rare Disease Patients and Advocates March 29, 2017 • A registry is a collection of information about individuals, usually focused around a specific diagnosis or condition. – NIH • Contact registries collect basic emographic and contact

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Need for PRP research

06.01.00  Need for PRP research EDITOR’S NOTE The PRP Alliance’s MISSION STATEMENT has three separate “objectives”: (1) To improve the diagnosis of PRP; (2) To identify options for the successful treatment of PRP symptoms; and (3) To promote meaningful research on PRP. The following article focuses on the third mission: To promote meaningful PRP research.

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