You are not alone. We are in this together.
The diagnosis of pityriasis rubra pilaris is often bittersweet. On one hand, the mystery is finally over and you may have an expectation that your dermatologist will make everything the way it was. In your Mind’s Eye, the vision you see is a return to pre-onset.
Then the reality sets in as this skin disorder becomes better known to you. You search the Internet, solicit the aid of Dr. Yahoo and Dr. Google, and finally discover the PRP Survival Guide. But you need more. You need access to people who understand the burden of PRP. You look for the Land of Hope.
PRP Facebook Support Group
For those who are seasoned Facebookers, the PRP Facebook Support Group is relatively easy to find. A PRP Facebook Administrator will enthusiastically accept your request. It is truly that simple.
This is a “Closed Group” where the conversation focuses on all things PRP.
Post a question and comments flood in. Need a hug, the huggers respond. Need a friend … there’s a community of fellow travelers ready to lend an ear or a shoulder. Need information … there are nearly 1,900 members who can share what works and what doesn’t for their unique version of PRP. We learn together. We are in this together.