May 2017

Editor’s Note: The efficacy of UV light therapy as a treatment option for pityriasis rubra pilaris seems to favor the young, This post is offered to jumpstart a discussion within the PRP community. We start with information published by the National Psoriasis Foundation. Phototherapy Phototherapy or light therapy, involves exposing the skin to ultraviolet light […]

  From the Editor… The following article was written by Candace Cooper, a PRP Patient Advocate from Fort Smith, Arkansas, and published in the August 2015 of the PRP community newsletter, On the Road…Our Journey from Onset to Remission. by Candace Cooper, PRP Patient Advocate “While everyone can’t agree on a definition of stress, all

04.54.00 shedding, flaking and peeling 04.54 Flaking skin https://www.facebook.com/groups/15865278115/permalink/10155168294878116/ Jan Tennant April 28 at 2:44pm I am not kidding when I say that skin flakes do not obey the laws of standard physics. They are quantum particles that randomly wink in and out of existence, especially wherever I’ve just swept or vacuumed. They also have

04.53.00 A kindred spirit, a celebrity, walks in our shoes EDITOR’S NOTE: When 7.5 million people in America suffer from psoriasis, it’s only a matter of time before a celebrity is diagnosed with this skin disorder. But how long does it take for a celebrity to step forward with the courage to share his/her journey

04.52.00 scalp ===== 04.52.00 What is a scalp? What Is a Scalp? Livestrong.com. Your scalp is made of three layers that cover the top of your skull. Beneath your hair are layers of skin, connective tissue with blood vessels and muscle. These layers are loosely attached to your scull by a type of connective tissue

04.51.02 What resources are available to PRP patients and their caregivers? PRP (Pityriasis Rubra Pilaris) Answers In April 1, 2014, the PRP Survival Guide was officially launched. The objective was to provide a repository of easy-to-access information specifically related to the onset, diagnosis, treatment, remission and/or maintenance of pityriasis rubra pilaris. The PRP Survival Guide

04.51.00 relapses, setbacks

04.49.03 Testimonials on RareConnect Christine Günther shared a link. March 28, 2017 Hi to all, I am so happy that many new members have found their way to this marvellous group! Like you might know, I am the mother of a 7-year-old happy little PRPer who has dealt with her PRP for more than 3.5

From the Editor … In March 2014, the members of the PRP Facebook Support Group were asked the question: Why should a PRP patient join the PRP Facebook community share? The 11 reasons listed below were the result of the 19 patients and caregivers who responded. They are just as valid for the PRP Community