PRP Alliance

Month: March 2019

PRP and Flares

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about flares and setbacks. Share articles you feel might …

PRP and Flares Read More »

PRP Survival Guide

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. NAME GOES HERE falls into that category. Finding answers in …

PRP Survival Guide Read More »

National Organization of Rare Disorders (NORD)

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. The National Organization of Rare Disorders falls into that …

National Organization of Rare Disorders (NORD) Read More »

Generic and Rare Diseases (GARD) Information Center

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Sometimes we find resources worthy of bookmarking. The Generic and Rare Diseases Information Center falls into that …

Generic and Rare Diseases (GARD) Information Center Read More »

PRP and Vitrile Gloves

From the Editor The following was posted on March 25, 2017 and introduced a new “glove” product. The unedited post/comments are available to PRP Facebook Support Group Members at: https://www.facebook.com/groups/15865278115/permalink/10155052461758116/?match=bml0cmlsZQ%3D%3D Abbas V — London, England, UK I’m trying out VITRILE glove. It’s a hybrid Nitrile with vinyl. So far my preferred glove as it combines the firmness of vinyl …

PRP and Vitrile Gloves Read More »

PRP Journeys — The Road Less Traveled

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with PRP. from onset, …

PRP Journeys — The Road Less Traveled Read More »