PRP Alliance

PRP Alliance

PRP Journeys — The Road Less Traveled

From the Editor

The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Tell us your story. Share what you have learned as a patient diagnosed with PRP. from onset, to diagnosis, to treatment and the journey.

Phil Popham

Location: Hertfordshire, England; Onset Date: October 2010; Onset Age: 66, Current Status: Remission; Remission Date: February 2012

During the first three months of 2011, Phil experienced many of the symptoms familiar to PRP patients worldwide. Islands of sparing slowly disappeared, my whole body was turning red, my skin shed continuously – I was raw and so very itchy, legs/ankles were swollen, nails thickened and yellow, thick/cracking skin on soles of my feet, some hair loss, no body temperature control, etc. PRP diagnosis confirmed by a second Dermatologist on 8 February 2011. Phil’s Story

If you want to share your story, please let me know via “Leave a Reply” at the end of this webpage.