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Whether you are the PRP patient, a caregiver/carer, or designated surrogate, thank you for taking the time to update the “core data” associated with your PRP patient profile. If you have any questions, please email me. bill.mccue@prpAlliance.org
Editor’s Note: The PRP Report is published by the National Organization of Rare Disorders on the NORD. A “Translation Version” using Google Translate functionality is provided here to accommodate PRP patients and their caregivers. Pityriasis Rubra Pilaris NORD gratefully acknowledges the following for their assistance in preparing this report: Mark Lebwolh, MD, Chairman, Dermatology Department, Icahn Medical …