PRP Alliance

March 2021

Thank You

  Thank you for sharing, Detailed results or the COVID-19 PRP Global Vaccination Survey will be shared via email with the patients and caregivers who have completed the survey. Summaries will be posted for review by all members of the PRP Facebook Support Group, If you have any questions, please email me.

Thank You

. IF YOU ANSWERED YES Whether you are the PRP patient, a caregiver/carer, or supporter of a PRP patient, thank you for sharing your willingness to COMPLETE the PRP Onset to Diagnosis Retrospective Survey. Since December 2020, I have processed nearly 700 surveys. Nearly 100 were either blank or have been previously submitted by PRP patients/caregivers. I will be emailing …

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We are Not Alone

We are Not Alone Bill McCue x It was a Saturday morning in April 2016 when I realized that too many of my PRP friends in the Land of Chat were suffering too much pain, e.g., Ginny M, Deborah B, Jesper J, Bill F, and two now departed: Tierney R and Bab P, The house was empty and …

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