Lorna Roberts, Eugene, Oregon In 2002, I became a member of the PRP Support Group, the, “you got mail” version. Tierney was there, along with, Jean Luc, Richard Greene, Carolyn Brown, Ralph Gilmore and Smitty, and others. I recall Tierney’s children were young. My interaction with Tierney was limited until the PRP Facebook Support Group emerged. …
Jan Tenant, Ringwood, New Jersey. The first thing I did when I got my official diagnosis was to write a long letter to my family and friends to tell them what I had been going through with this mystery disease, PRP. The second thing was to join the PRP Facebook Support Group. It was Tierney …
This section of Tierney’s Memorial is an opportunity for PRP patients and caregivers to expand their remembrances beyond 500 and even 1,000 words. Please use “Leave a Reply” at the end of this webpage to submit your stories via email to: Imagine, if you will, that Tierney’s friends and family assemble in a living room …
The Happy Dance for Tierney This section of Tierney’s Memorial provides EVERYONE with the opportunity to tell stories that will make everyone else smile. Either use “Leave a Reply” to share a ‘laughable moment” where Tierney laughed or made you laugh. You may also send your “laughable moment” to bill.mccue@prpSurvivalGuide.org. Going to let Tierney kick this one off. On March …
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There is no excerpt because this is a protected post.
Tierney has been part of my PRP journey from the day I was diagnosed with PRP (November 28, 2012), the day I joined the email-based PRP Support Group, became a subscriber to their list serve and began reading “sharings” from her and others. Whatever the question, she always responded with kindness and concern. The moment …
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Caring, Sharing and COUNTING. Tierney was more than just caring and sharing. She wanted PRP patients to “Stand up and be counted”. This section of Tierney’s Memorial asks PRP patients/caregivers to update their patient profiles and identify PRP-savvy dermatologists. Just another way to say “Thank You” to Tierney. LINK TO 2020 PRP GLOBAL CENSUS
Tierney’s Story (circa 1994) Tierney Ratti did not formally chronicle her PRP journey beyond the following letter. 30 November 1994 Dear Lady and Gentlemen: After being diagnosed with pityriasis rubra pilaris in October, I contacted the National Organization for Rare Disorders, Inc., and was given your names as others with this disease. I have spoken …