While her PRP journey has ended, Tierney Ratti’s family has created a Memorial Fund to help pay for her “end-of-life transition and fulfill her final wishes”. Charlie has asked me to post the following here — to the PRP Facebook community she loved. From the Ratti Family Tierney Sue Lynch Ratti, my devoted wife and […]
Tierney’s GoFundMe Campaign Read More »
Editor’s Note: “She is gone. Her journey is over.” That was the message shared with the 2,103 members of the PRP Facebook Support Group. While the immediate reaction was sadness, it didn’t take long for the Land of Chat to honor Tierney’s memory. The Land of Chat was aware of Tierney’s hospitalization. Her daughter, Samantha, posted the news
Editor’s Note: Murray Rose, PRP patient snf unregistered curmudgeon. Onset of PRP symptoms in August at the age of 66. Currently lives in Surrey British Columbia with his wife, Carel and a chainsaw. Murray has been one of the “Three Amigo Administrators” serving the 2,000-plus members of the PRP Facebook Support Group, a.k.a. the Land of Chat. Having lost
Words from Murray Rose Read More »
Tierney Lynch Ratti, 61, of Virginia Beach, Va., formerly of Vinton, Iowa, died Sept. 12, 2020, at the Sentara Hospice House, in Virginia Beach. She had suffered for several years from complications of pityriasis rubra pilaris, commonly referred to as PRP. Her body has been donated for medical research, with interment at a later date. Tierney was
Obituary — Tierney Lynch Tierney Read More »
Editor’s Note: While pityriasis rubra pilaris is considered gender neutral, (see NORD PRP Report), there are those who believe it may be a “wee bit” more prevalent in children diagnosed with Juvenile Onset. Of course Ginny Maxwell (and her PRP kiddos represent a 50-50 gender allocation. The premise of a Ted Talk video (circa 2013) recently unearthed by
Adding Gender to “Core Data” Read More »