PRP Alliance

Month: May 2017

What are the opportunities for PRP advocacy?

Under Revision The word advocacy has been around for quite some time. ✽  Middle English and Old French advocacie ✽  Medieval Latin advocatia ✽  Classical Latin advocatus From the perspective of a patient diagnosed with pityriasis rubra pilaris, there are six levels of advocacy. But let’s start with a composite definition of advocacy. ✽  Advocacy is an act or process that …

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How to deal with rude people

From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient or …

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PRP and Weight

From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient or …

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PRP, Travel and Vacations

From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient or …

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PRP Snapshots

From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. We are looking for BEFORE photos with a matching AFTER. If …

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INDEX tattoos

From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as a patient or …

INDEX tattoos Read More »