PRP Alliance

Month: January 2020

Glossary Index

The following INDEX provides a quick scroll of over 100 words, terms and jargon currently included in the PRP Patient-Friendly Glossary of Word, Terms & Jargon. You may return to actual PRP Glossary at any time. If you would like to suggest a word, term or jargon NOT currently in the PRP Glossary, please “Leave a Reply” at the end …

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UPDATE

PRP Awareness Month Begins Today Select LanguageAfrikaansAlbanianAmharicArabicArmenianAzerbaijaniBasqueBelarusianBengaliBosnianBulgarianCatalanCebuanoChichewaChinese (Simplified)Chinese (Traditional)CorsicanCroatianCzechDanishDutchEsperantoEstonianFilipinoFinnishFrenchFrisianGalicianGeorgianGermanGreekGujaratiHaitian CreoleHausaHawaiianHebrewHindiHmongHungarianIcelandicIgboIndonesianIrishItalianJapaneseJavaneseKannadaKazakhKhmerKoreanKurdish (Kurmanji)KyrgyzLaoLatinLatvianLithuanianLuxembourgishMacedonianMalagasyMalayMalayalamMalteseMaoriMarathiMongolianMyanmar (Burmese)NepaliNorwegianPashtoPersianPolishPortuguesePunjabiRomanianRussianSamoanScots GaelicSerbianSesothoShonaSindhiSinhalaSlovakSlovenianSomaliSpanishSundaneseSwahiliSwedishTajikTamilTeluguThaiTurkishUkrainianUrduUzbekVietnameseWelshXhosaYiddishYorubaZulu Powered by Translate November 1, 2017 Every patient organization needs an Awareness Day they can call their own. We celebrate Rare Disease Day on the last day of February and share the spotlight with 7,000 other rare diseases. However, PRP Awareness Month gives us …

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Guselkumab in the Treatment of Pityriasis Rubra Pilaris

An Open Label Pilot Trial of Guselkumab (Tremfya) in the Treatment of Adults With Pityriasis Rubra Pilaris (PRP)® Open label is a term used to describe the situation when both the researcher and the participant in a research study know the treatment the participant is receiving. Open-label is the opposite of double-blind when neither the researcher nor the participant knows …

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PRP Patient-Friendly Glossary of Words, Terms & Jargon

 x •  A •  B •  C •  D  •  E •  F •  G •  H •  I •  J •  K •  L •  M •  N •  O •  P •  Q •  R •  S •  T •  U•  V •  W•  X • Y •  Z • Top   x Editor’s Note — The PRP Patient-Friendly Glossary of Words, Terms and Jargon represents a journey of sorts — my journey within the global PRP community. Along the …

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Land Of Chat — Year End Report

From Bill McCue, Editor In 2008, Jonah Grant-Scarfe, a PRP sufferer from Canada, recognized the value of Facebook as a tool with which to share PRP-related insights and experiences with fellow PRP patients. The PRP Facebook Support Group didn’t immediately catch on. In fact, it took five years to reach the 100-member milestone. Facebook provides access to basic analytics regarding …

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