The following INDEX provides a quick scroll of over 100 words, terms and jargon currently included in the PRP Patient-Friendly Glossary of Word, Terms & Jargon. You may return to actual PRP Glossary at any time. If you would like to suggest a word, term or jargon NOT currently in the PRP Glossary, please “Leave a Reply” at the end of this webpage.
A
autoinflammatory vs. autoimmune
B
balderdash
befuddlement
biopsies
biopsy poll (circa 2013)
C
caregivers
causes of PRP
census, global/challenges
closed group
coalition of PRP parents & kids
cohort
contagious
coverage calculation
COVID-19 PRP Clearinghouse
creams vs ointments
curable?
D
database, PRP global
delete button
depression
dermatologists
dermatopathologists
dexterity
diagnostic odessey
diet, anti-inflamatory
differential diagnosis
Dowling Oration
duration
E
ear stuff
ebb abd flow
efficacy
energy & fatigue
erythroderma
eyes & vision
F
face-to-face time
feedback
find-a-PRP-derm
fingernails run amuck
flares
freebies (Aquaphor)
full bloom
G
GARD PRP report
good start
Google Dependency Syndrome
H
hair loss
happy dance
healing milestones
history of the name
HOPE — in the queue to be added
howling
hijacking
I
in my humble opinion (IMHO)
index
itch
L
land of chat
land of hope
laundry
lip care
M
managing expectations — remission
mantra
mirror, mirror, on the wall…
mobility
N
natural histories
nitrile gloves
NORD PRP report
O
odds
onset
P
pain
phases
pillars of support
poking the bear
prednisone
privacy
progression
PRP-er
R
roadside emergency kit
rules
remission
S
sauna suit
scalp — crusty, itchy & flaky
self-advocacy
short end of the stuick
signs & symptoms
skin by the cup
slather
sleep deprivation
swollen feet & legs
synonyms
T
take charge
TOOLS — in the queue to be added
types
U
unicorns
V
vacuum ckleaners
venting
W
what works for one…
why?
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I think “screwdriver” should be in the glossary – pretty much anyone who has had PRP would have used one to open a soda can
also, I think “vintage hairbrush”
mine was a life saver for me and still scares my kids, who when they were little used it to scratch my back – the thing terrifies them now
I also think “hope” needs to go in there – we all need hope X
I love your ideas, Eve — especially HOPE. I have started a another category I will call TOOLS. PRP patients have figured out “workarounds” for problems like your screwdriver, e.g., reaching a itch just out of range, applying topicals to the middle of one’s back, etc. — Bill