November 2018

PRP Awareness Month is an opportunity for the worldwide PRP Community to show solidarity. While every diagnosis of pityriasis rubra pilaris results in a unique journey, we all face — or have faced — the daily challenges of body, mind, and spirit. PRP Awareness Month is an opportunity for the worldwide PRP community to show […]

Are you a “Newbie” or “Seasoned Traveler” on our journey from onset to remission? Are you a patient or caregiver facing the daily challenges of body, mind and spirit? Are you part of an extended family or a friend who wants to understand and offer support?  The following list of PRP-related resources should be shared with those who care. Remember… What works

From the Editor… I have been in communication with Dr. Jason Sluzevich from the Mayo Clinic in Jacksonville, FL. He is the principal investigator for a PRP study. Dr. Sluzevich writes: “This study is being done to evaluate whether Cosentyx can improve the signs and symptoms of PRP in ADULT ONSET patients. This study will

There has never been a WORLDWIDE SCIENTIFIC SURVEY of 1,000 PRP patients! … until now. On July 29, 2018, over 1,700 PRP patients (or their caregivers) were invited to participate in the UCLA PRP Survey. You have the opportunity to share what you know about your version of PRP — what worked and what didn’t work

From the Editor… With the publication of my article in September issue of The Dermatologist (Rare Disease Patients A Need Roadmap), the PRP Community can now begin a grassroots advocacy effort. STEP ONE: Read the article It is important that you understand what we are trying to accomplish. With very few exceptions, dermatologists do not routinely refer