PRP Alliance

PRP Alliance

National Organization of Rare Disorders (NORD)

From the Editor
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge.

Sometimes we find resources worthy of bookmarking. The National Organization of Rare Disorders falls into that category.

NORD PRP Report — Genesis


NORD PRP Report, Summary FUTURE

If you have any questions about the National Organization of Rare Disorders, please send an email to