From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as a […]
Editor’s Note: For nearly 12 months I was prescribed acitretin (25mg – 50mg) and I applied prescribed topical creams: Clobetasol (palms and soles), Desonide (face and ears) and triamcinolone (everything else). While the PRP community discusses over-the-counter moisturizers, there is very little discussion of prescribed topicals. Perhaps this post will help jumpstart that discussion. Triamcinolone
What do I need to know about prescribed topicals? Read More »
Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the worldwide PRP community. As a global community we are confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look it – a diagnosis supporting clinical observations is the result. Grand Rounds We have no
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From the Editor… Prior to November 2013, there was no concerted effort by healthcare professionals or PRP patients to gather information about the PRP community. The first PRP Global Census was based on a mailing list extracted from over 29,000 emails archived by the PRP Support Group founded in 1997. As a member/subscriber to the
How do we track the Global PRP Community? Read More »
37. PRP Survival Guide. Chapter 7 – PRP Research. http://prpsurvivalguide.org/2017/05/21/chapter-6-prp-research/
Chapter 6 PRP Research Read More »
The PRP Survival Guide is designed for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Survival Guide to provide specific medical advice, but rather to provide users with information to better understand and manage the burden of pityriasis rubra pilaris on body, mind
When a PRP patient looks up “pityriasis rubra pilaris in Google, DermNetNZ.org is typically #1 in the Top 10 of websites found. New Zealand is a country with with a population of 4.6 million and only 62 dermatologists. There is an estimated “active” PRP patient population of only 12. DermNet New Zealand claims to be
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07.05.01 – British Association of Dermatologists British Association of Dermatologists (BAD)
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07.04.03 – Society for Investigative Dermatology Society for Investigative Dermatology (SID) Home The Society for Investigative Dermatology was born out of a vision to serve a segment of science previously unrepresented by the medical societies of the United States: investigative dermatology. The founders saw a need for an organization with a devotion to cutaneous investigation,
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