Protected: PRP Alliance Board Meeting 08/05/2017
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July 2017
Diagnosing PRP — More Stuff to Ponder
What is a Medical Diagnosis? A MEDICAL DIAGNOSIS is based on information from sources such as findings from a physical examination, an interview with the patient or family or both, a medical history of the patient and family, and clinical findings as reported by laboratory tests and radiologic studies. A differential diagnosis is a process
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RDB — Signs & Symptoms
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Signs & Symptoms The terms “sign” and “symptom” are not redundant. A SIGN
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RDB — Summary
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Summary Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that
RDB — Investigative Therapies
From the Editor… With one notable exception, the status of PRP research is a source of concern among the PRP patient population. A search of ClinicalTrials.gov, for example, retrieves only one entry. A pilot study to determine the efficacy of a biologic medication was started at Icahn School of Medicine at Mount Sinai in New
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RDB — Standard Therapies
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Standard Therapies Treatment of pityriasis rubra pilaris (PRP) is mainly based on reports
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PRP Research — Treatment Options
From the Editor… I recently stumbled upon an article that was published in JAMA Dermatology in January 2014: “Treatment Options for Pityriasis Rubra Pilaris Including Biologic Agents – A Retrospective Analysis From an Academic Medical Center”. What I found most interesting about this research was that I could actually understand what they were presenting. It
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Causes of PRP — An Overview
From the Editor… I have been working on a revision of the PRP Report in the Rare Disease Database hosted by the National Organization of Rare Disorders. Writing about the “CAUSES” of pityriasis rubra pilaris is particularly challenging. Do we know what causes PRP? Much to the frustration of the PRP community, the answer is
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Signs And Symptoms — What’s the difference?
From the Editor… I have been working on a revision of the PRP Report in the Rare Disease Database hosted by the National Organization of Rare Disorders. The topic of “SIGNS & SYMPTOMS” presented a particularly challenging dilemma. I simply did not know the difference. I thought the terms were redundant. I was wrong I
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RDB — Affected Populations
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Affected Populations Based on conversations within the PRP community, we can say with
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