The PRP community has long lamented the lack of research. Since October 2012, however, researchers at Thomas Jefferson University have been conducting ongoing genetic research. In 2014 their research efforts expanded to include clinical analysis. For all intents and purposes, TJU was the only game in town. ✽ What is the status of PRP Research? ✽ […]
From the Editor… From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as a patient or caregiver. Share
Chapter 4 — PRP and Remission Read More »
Chapter 3 of the PRP Survival Guide has been revised. Please go to DAILY LIFE.
Chapter 3 — Living with PRP Read More »
This chapter covers the onset of symptoms, misdiagnoses, biopsies as a diagnostic tool and what it takes to get an “official” PRP diagnosis. For most of us, this is looking back to see how our experiences compare with others in the PRP community. The Basics ✓ How is PRP diagnosed? ✓ What are the symptoms and signs? (NORD
Chapter 1 — Part B: Diagnosing PRP Read More »
The PRP Survival Guide has been reorganized. Please go to: PRP 101: The Basics
Chapter 1 — Understanding PRP (redirect) Read More »
From the Editor I was diagnosed with pityriasis rubra pilaris (PRP) on November 28, 2012 — nearly three months after a red spot appeared on my forehead. Someone from my dermatologist’s office called me to confirm the diagnosis and to schedule an appointment for the following day. All she shared with me was the proper spelling of pityriasis rubra pilaris. That evening
How to Use the PRP Survival Guide Read More »