March 2019

What is the Rare Skin Disease Referral Initiative? Pityriasis rubra pilaris is one of 574 rare skin diseases. In fact, with a prevalence of only one in 400,000, there are only an estimated 808 patients under treatment in the U.S. When a patient is diagnosed with pityriasis rubra pilaris (PRP), the dermatologist – with very

Editor’s Note The following message was submitted as a comment to the American Airlines regarding the recently incident that resulted is a mother and her son, both diagnosed with a rare skin disorder (ichthyosis) and removed from a flight. SEE USA TODAY REFUSAL TO TRANSPORT According to the International General Rules (AA1) posted on your

    PATIENT DEMOGRAPHICS PRP Patient Profiles: 103 PRP Facebook Support Group: 72 Non-aligned: 31 Number of PRP patient profiles by state: Australia Capital Territory): 2 New South Wales): 27 Queensland: 24 South Australia: 2 Tasmania: 1 Victoria: 26 Western Australia): 8 Note Yet Shared: 13

From the Editor – The following sources were used in the preparation of Jan Tennant’s article PRP, Eyes and Impaired Vision. MedlinePlus, U.S. National Library of Medicine ❏» https://medlineplus.gov/ency/article/001017.htm National Institutes of Health ❏» https://nei.nih.gov/health/cornealdisease/ ❏» https://nei.nih.gov/health/dryeye/dryeye ❏» https://nei.nih.gov/health/blepharitis ❏» https://nei.nih.gov/kids/glossary ❏» https://nei.nih.gov/kids/about_the_eye ❏» https://nei.nih.gov/kids/your_eyes_natural_defenses AllAboutVision.com ❏» https://www.allaboutvision.com/conditions/eye-discharge.htm ❏» https://www.allaboutvision.com/eye-exam/expect.htm

Editor’s Note: A special thanks to Jan Tennant, Ringwood, New Jersey for her efforts to provide a PRP-oriented tutorial on eyes and impaired vision. In so doing she set a standard for similar tutorials in other areas, e.g., feet and impaired mobility, hands and impaired dexterity, etc. by Jan Tennant Patients diagnosed with pityriasis rubra