April 2019

From the Editor… When I was diagnosed with pityriasis rubra pilaris on November 28, 2012, my evening was spent searching the internet. I was not pleased with the redundancy, medical jargon and “rat holes” into which I fell. At some point that evening I accessed a 1,200- plus word overview of PRP. Even though it […]

  How Do You Calculate the Percentage of PRP Coverage? The Rule of Nines is an approach to calculate the percentage of a patient’s total skin impacted by burn. The results are used to help guide treatment decisions including fluid resuscitation and becomes part of the guidelines to determine transfer to a burn unit. ❏½

Editor’s Note – PRP Awareness Month is six months away. There’s plenty of time to advance the interests of the PRP Global Community. ligula, eget egestas tortor tempor venenatis. Vestibulum id leo sit amet erat eleifend fringilla. Vestibulum fringilla lacinia lacus sit amet consequat. Mauris tortor leo, hendrerit vel imperdiet at, dignissim eget arcu. UPDATE

Editor’s Note: This webpage focuses on the PRP Global Database as of April 31, 2019, the PRP-related data we capture, and why the data is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare professional, the

What is the Rare Skin Disease Referral Initiative?   And WHY Texas? Pityriasis rubra pilaris is one of 574 rare skin diseases. In fact, with a prevalence of only one in 400,000, there are only an estimated 812 patients under treatment in the U.S. When a patient is diagnosed with pityriasis rubra pilaris (PRP), the

  “How long does it take to get from ONSET to REMISSION?” It’s a pretty common question whether the PRP patient has been diagnosed with Adult Onset PRP or Juvenile Onset PRP. When James Shooter walked into St. Bartholomew Hospital in 1828, our disease didn’t have a name. However, I venture that he askednhisdoctor: “How

Stewart Littlejohn Versus Her Majesty’s Courts and Tribunal Services From the Editor – Stewart Littlejohn has had PRP since June 2017. Unable to work as a chauffeur, he requested UK Employment Support Allowance. Her Majesty’s Courts and Tribunal Service properly convened a 3-person panel to decide Stewart’s fate. The following memorandum was carefully crafted by

From the Editor (updated 10/16/2020) – The PRP patient database began during the summer of 2013 and has grown to include 2,240 records of which 1,860 are members of the PRP Facebook Support Group and 380 are non-aligned but have a valid email address. Each PRP patient profile focuses on seven datapoints we classify as