PRP Alliance

November 2020

PRP, ADA and the Workplace

From the Editor   The following is an introduction to the Americans with Disabilities Act with links to third-party websites with additional information. Discrimination and ADA rights The following is presented only as a guideline of the federal Americans with Disabilities Act (ADA). State laws may also affect your eligibility and rights. Consult the EEOC or …

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Itch Notes

Comments       Steve Denny wonders if anyone has tried CBC oil?   Cathy Hoover — You sound so much like me when I started on this terrible journey seven years ago. The itching was excruciating. Sometimes Noxcema or ice packs would help with itching. I was so exhausted that it took me an hour every …

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PRP — What Is Your Word?

Editor’s Note… On October 4, 2017, Murray Rose (Surrey, British Columbia, Canada) asked PRP patients and caregivers to share one word that describes PRP. PRP, you are ______. On November 17, 2020, Murray resurrected the find-a-word challenge with another post. The responses are listed below. Feel free to use “Leave a Reply” to add more words …

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Project Itch

Editor’s Note — There was a period of time during my PRP journey when I had little or no energy. I would wake at 7:00 AM, sit at my computer for 30 minutes and read the most recent emails from the PRP-L List. I joined the email-based PRP Support Group the evening of the day I …

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Quote of the Day

From the Editor   Have you ever heard a healthcare professional say something about PRP that is simply incorrect. Sometimes what they say goes well beyond stupid.   While commenting to a fellow PRP Facebooker’s post on November 12, 2020,  Jean N, Danvers, Massachusetts (Onset: May 2005 at the age of 51) recounted how her second dermatologist …

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PRP Awareness Month Diary

From the Editor Every November — since November 2013 — I have attempted to find some meaningful way to build awareness of PRP within the PRP global community and among healthcare professionals. After a four-month reorganization of the PRP Survival Guide, my primary goal is to expand content by ADDING more insights and observations from …

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Skin Hydration

From the Editor This issue of skin hydration was recently discussed in the Land of Chat (PRP Facebook Support Group). An effort will be made during PRP Awareness Month (November 1-30, 2020) to harvest the observations of the PRP global community. Please use “Leave a Reply” to ask a question or share a PRP-related insight or experience regarding THIS …

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What Works — Skin Hydration Treatment

From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.” Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one doesn’t work for all, but if …

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