The rendering of an “official” diagnosis of pityriasis rubra pilaris requires two elements: clinical observation AND a biopsy that “supports” a diagnosis of PRP. Clinical observations of a trained dermatologist When a yet-to-be diagnosed PRP patient is seen by a dermatologist, the scope of the symptoms may vary from a small persistent spot on the […]
How is PRP diagnosed? Read More »
Based on the comments of fellow PRP patients and caregivers, dermatologists seem reticent to go beyond a simple diagnosis. We are told Adult Onset PRP or Juvenile Onset PRP. The age of onset makes that an easy call. As PRP patients and caregivers, we want to know where we fit it. Atypical Adult Onset With adults,
How important is it for you to know your type? Read More »
From the Editor… Why is it important to know the odds of getting PRP, adult onset versus juvenile or by one of the six “types”? Quite simply — it’s a matter of storytelling. Each PRP patient and/or caregiver is a subject-matter expert. When I am asked a question about PRP or had the opportunity to share my
What were my odds of getting PRP? Read More »
Last April, 2014, one year after its formation, 19 members of the PRP Facebook Support Group answered the the following question: Why should an adult with PRP, or the parent of a child diagnosed with juvenile onset PRP join a support group and share? Here’s exactly what the 19 PRP Facebookers answered. To better understand pityriasis rubra pilaris through
11 Reasons Why PRP Facebookers Share Read More »