Daily Life

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned as a PRP patient or caregiver […]

From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as a

04.63.00 weight, e.g. gaining weight, losing weight 04.63.01 Weight https://www.facebook.com/groups/15865278115/permalink/10155158405643116/ Elaine Crowder April 25 at 12:18pm Hi just a question how much weight are people losing with prp thanks ============== 04.63.02 While “active” with PRP did you gain or loose weight? EDITOR’S NOTE: The following thread was initiated by Sharon O on June 10, 2015

04.62.00 vitamins and supplements

04.61.00 traveling and vacations

04.60.00 testimonials, snapshots and blogs

04.58.02 How common a symptom is the inability to sweat EDITOR’S NOTE: The following thread was initiated by Hailey S on July 5, 2015 as she worried about her inability to sweat and whether it would cause her to overheat. In addition to the 16 participants in this thread, the comments of an additional 17

04.58.00 sweating and thermoregulation 04.58.03 SWEATING? You may suddenly notice that you are not perspiring anymore, even in hot weather! This is a symptom that many PRPers experience, and the cause is not certain but is probably tied into the fact that you are already losing much of your body’s moisture because of the shedding

Editor’s Note: The efficacy of UV light therapy as a treatment option for pityriasis rubra pilaris seems to favor the young, This post is offered to jumpstart a discussion within the PRP community. We start with information published by the National Psoriasis Foundation. Phototherapy Phototherapy or light therapy, involves exposing the skin to ultraviolet light

  From the Editor… The following article was written by Candace Cooper, a PRP Patient Advocate from Fort Smith, Arkansas, and published in the August 2015 of the PRP community newsletter, On the Road…Our Journey from Onset to Remission. by Candace Cooper, PRP Patient Advocate “While everyone can’t agree on a definition of stress, all