From the Editor… Members of the PRP Facebook and RareConnect communities understand the importance of a support group. The following is an exchange between 16 members of the PRP Facebook Support Group. Nana B – New York City This week has been a nightmare for me. Just when I think I’m getting better, boom, everything […]
Daily Life Chat — Setbacks Read More »
From the Editor… There are many ways to find itch relief. The following video, posted by Jan T (Ringwood, NJ), illustrates the legendary Vertical Tree Rub (VTR). https://www.youtube.com/watch?v=8CnFo7qinng
Itch Relief in the Wild Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about PRP, ears
PRP, Ears and Impaired Hearing Read More »
From the Editor – DRAFT The following is a discussion about a topic that frustrates many PRP patients and caregivers. We must find a way to have dermatologists provide patients diagnosed with PRP a referral to PRP patient support resources. When a dermatologist in the US renders a diagnosis of pityriasis rubra pilaris, a diagnosis
Why are PRP patient resources a secret? Read More »
by Bill McCue (August 2017) What does holly have to do with pityriasis rubra pilaris? And what does holly have to do with HOPE and REMISSION. Let me explain. My house has holly bushes; too many holly bushes. Oh, how I hate holly bushes! But they look great from afar. Dark green. Lush green. But
I hate holly more than PRP Read More »
From the Editor… The use of efficacy of nitrile gloves by PRP patients is well documented within the PRP community. Of course, the information is scattered hither and yon. The purpose of this page is to gather feedback from PRP patients and caregivers for newcomers. What are nitrile gloves? The Safety Zone is one of
PRP and Nitrile Gloves Read More »
From the Editor … The alternate spelling of humor/humour is a courtesy to the PRP communities in the UK, Canada, Australia, New Zealand – any where PRP patients and caregivers (carers) require extra help to find this page. (That was a joke!) Please use “Leave a Reply” to submit your PRP-related humor/humour. Murray R –
PRP Humor and Humour Read More »
From the Editor… How is malware related to PRP and coping strategies? Let me try to explain. By the way – reading this article will NOT cause a malware attack. It was a dark and stormy night (two weeks ago) when a member of the PRP Facebook Support Group posted a question about the efficacy
How Fragile We Are Read More »
From the Editor… There may be a place for music in the treatment of pityriasis rubra pilaris – music that brings peace and solace to the PRP community. This page is an experiment to see what “inspiration” comes our way. If music can soothe the soul, what music might others share. WARNING: Apologies in advance
Sometimes we need to “Give a Listen” Read More »
From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. The image of a desert seemed appropriate for