https://www.facebook.com/groups/15865278115/permalink/10158628990338116/ Link to Original Post Steven B, Northern California First off I want to say thank you for the group acceptance. I have had PRP for the past year and a half and JUST was diagnosed a couple months ago. (Dermatologist thought I had psoriasis for over a year until I got a second […]
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and PROGRESS as a
This section of PRP 101 focuses on the daily challenges of body, mind, and spirit encountered by PRP patients and their caregivers. The topics range from ALCOHOL to WORKPLACE. Every PRP journey is unique. The phrase, “my version of PRP”, helps underscore the fact that “What works for one does not work for all.” Forewarned
PRP 101: DAILY LIFE Read More »
The topic of Mental Wellness requires a more robust commitment in the PRP Survival Guide. Towards this end, an effort will be made during PRP Awareness Month to discuss issues related to Mental Wellness. Questions related to… FAMILY LIFE ❏» What are strategies to maintain a healthy family life? family life and impaired relationships >>>
PRP 101: MENTAL WELLNESS Read More »
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Compared to other more common skin disorders, PRP has very little research in the pipeline. PRP-specified research projects over the past eight years can be counted on one hand. ❏ Thomas Jefferson University Research ❏ Oregon Health and Science University Research ❏ UCLA, USC and Kaiser Permanente Research ❏ Brigham Research Institute Research PRP Global
PRP 101: PRP RESEARCH Read More »
From the patient/caregiver perspective, there are three observations to be made about treating pityriasis rubra pilaris: (1) Each PRP journey is unique. (2) You are not alone. We are on this journey together. Others have traveled the same road. There is a global PRP community (3) What works for one doesn’t work for all. This
PRP 101: TREATING PRP — Overview Read More »
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We begin PRP 101 with the basics. Whether you are a newly diagnosed patient or supportive caregiver (spouse, partner, parent, family or friend), or a more “seasoned traveler”, the questions we hear most often fall conveniently into two categories: ❏½ Questions with answers you WANT to know ❏½ Questions with answers you NEED to know
PRP 101: THE BASICS Read More »