PRP Advocacy

TOPIC: Remission (Endgame) Posted by Ron A – East Sussex , England (12/28/2017) Let’s talk about remission. How long does it take? Christine G– Zürich, Switzerland Sorry, I am the first one who respond to your post and I am the one who will probably bring the not so good news. Juvenile onset is some […]

Editor’s Note: Once diagnosed with pityriasis rubra pilaris, patients face the daily challenges of body, mind and spirit. The PRP Art Gallery provides an outlet for the graphic representation of our journey. Other links to soothe the spirit of all PRP travelers. ❏½ inspiration ❏½ poetry, PRP ❏½ humor – or is it humour? PRP

From the Editor… Having written 24 PRP community newsletters (598 pages) during the period April 1, 2014 to October 1, 2015, the prospect of writing eight more issues between now (May, 2019) and December) gives me pause. Suffice it to say, the effort requires an extra and sustained commitment of time and effort. The May

From the Editor… When I was diagnosed with pityriasis rubra pilaris on November 28, 2012, my evening was spent searching the internet. I was not pleased with the redundancy, medical jargon and “rat holes” into which I fell. At some point that evening I accessed a 1,200- plus word overview of PRP. Even though it

  How Do You Calculate the Percentage of PRP Coverage? The Rule of Nines is an approach to calculate the percentage of a patient’s total skin impacted by burn. The results are used to help guide treatment decisions including fluid resuscitation and becomes part of the guidelines to determine transfer to a burn unit. ❏½

Editor’s Note – PRP Awareness Month is six months away. There’s plenty of time to advance the interests of the PRP Global Community. ligula, eget egestas tortor tempor venenatis. Vestibulum id leo sit amet erat eleifend fringilla. Vestibulum fringilla lacinia lacus sit amet consequat. Mauris tortor leo, hendrerit vel imperdiet at, dignissim eget arcu. UPDATE

Editor’s Note: This webpage focuses on the PRP Global Database as of April 31, 2019, the PRP-related data we capture, and why the data is important to every member of the PRP global community. Whether you are a patient, loving caregiver (spouse, partner, or parent), an extended family member, friend or a healthcare professional, the

What is the Rare Skin Disease Referral Initiative?   And WHY Texas? Pityriasis rubra pilaris is one of 574 rare skin diseases. In fact, with a prevalence of only one in 400,000, there are only an estimated 812 patients under treatment in the U.S. When a patient is diagnosed with pityriasis rubra pilaris (PRP), the