Editor’s Note: There have been situations in the past where a PRP patient has needed financial help to access a PRP-savvy dermatologist. This will become less of an issue as we reach out to teaching hospitals and identify PRP-savvy dermatology departments. The Genetic and Rare Disease Information Center offers some additional options in the following […]
Help with Travel Costs Read More »
Editor’s Note: During the past four years I have followed links posted to the PRP Facebook Support Group to evaluate products that might help deal with the burden of pityriasis rubra pilaris. The Genetic and Rare Diseases Information Center has published a number of tutorials that should be required reading for PRP patients and caregivers.
Finding and Evaluating Online Resources Read More »
03.09.00 Preserving Patient Access to Treatments EDITOR’S NOTE: Since 2013, the AADA has been a member of the Coalition for Accessible Treatments (CAT), whose key priority is to advocate for enactment of H.R. 1600, the “Patients’ Access to Treatments Act” (PATA) sponsored by Rep. David McKinley (R-WV) and Rep. Lois Capps (D-CA). As a member
Preserving Patient Access to Treatments Read More »
03.08.00 What constitutes an emergency or urgent care situation and what are the most usual treatments?
What constitutes an emergency or urgent care situation? Read More »
Editor’s Note: The following article appeared in Medical Economics in January 2009. Medical Economics did not specifically evaluate these Centers of Excellence for their PRP savviness. Quality medical care can be found in every specialty and in every corner of the country, in hospitals and free clinics, in solo practices, and in sprawling medical centers.
What are Centers of Excellence? Read More »
03.06.04 What Things Should I Know When Selecting a Complementary Health Practitioner – GARD If you’re looking for a complementary health practitioner to help treat a medical problem, it is important to be as careful and thorough in your search as you are when looking for conventional care. Here are some tips to help you
What Things Should I Know When Selecting a Complementary Health Practitioner? Read More »
03.06.03 What are the issues related to a Complementary Health Approach? – GARD https://nccih.nih.gov/health/decisions/consideringcam.htm Millions of Americans use complementary health approaches. Like any decision concerning your health, decisions about whether to use complementary approaches are important. The National Center for Complementary and Integrative Health (NCCIH) has developed a fact sheet to assist you in your
What are the issues related to a Complementary Health Approach? Read More »
Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, the guidelines below include several ways to identify healthcare professionals who have
How to find a disease specialist — GARD Read More »
Why is apremilast prescribed? Apremilast is used to treat psoriatic arthritis (a condition that causes joint pain and swelling and scales on the skin). Apremilast is in a class of medications called phosphodiesterase inhibitors. It works by blocking the action of certain natural substances in the body that cause inflammation. Brand name: Otezla® Click HERE
What do I need to know about apremilast/Otezla? Read More »
Why is adalimumab prescribed? Adalimumab injection is used alone or with other medications to relieve the symptoms of certain autoimmune disorders (conditions in which the immune system attacks healthy parts of the body and causes pain, swelling, and damage) including the following: ❏½ rheumatoid arthritis (a condition in which the body attacks its own joints,
What do I need to know about adalimumab/Humira? Read More »