From the Editor
The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment.
Share what you have learned about PRP as a patient or caregiver. Share what you have been told by your dermatologist? Share articles you feel might be worth reading or websites worth visiting. Please use “Leave a Reply” at the bottom of this webpage to answer the following question:
How has PRP affected your family life and relationships?
INDEX – family life and impaired relationships
My partner was diagnosed with PRP right as COVID 19 arrived in the states. I work in the healthcare industry as an RN and life was about to unravel. He was very ill and was hospitalized on two occasions in March, both as emergent admissions with 911 sirens blaring and family members unable to accompany a loved one at the hospital. Since then…we have both learned a lot about each other and our love grows strong. Being the caretaker of my partner stretched my patience and my inner strength to the max. Being a witness to his incredible suffering was the hardest thing I have ever done in my life. This is a very challenging syndrome with so many unknowns. Don’t forget to take time out and to talk frequently to your love one, let them know what you are feeling and keep the communication open. ONE DAY AT A TIME