The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge.
Share what you have learned about juvenile onset PRP as a parent/caregiver. Share articles you feel might be worth reading or websites worth visiting.
This section of Chapter 3 of the PRP Survival Guide will expand as more PRP parents share.
Please use “Leave a Reply” at the end of this webpage to share.
❏½ PRP Parenting Index
❏½ Children and School
❏½ Juvenile Onset Patient Population
❏½ Juvenile Onset vs Adult Onset COMING SOON
❏½ PRP Parents & Kids (update webpage)
In the Queue provides readers with a link to topic-specific POSTS in the PRP Facebook Support Group. Members may click the boldface blue link and read the unedited post. in its entirety. Non-members have two options: join or wait for the original post to be edited and added to the PRP Survival Guide as a bona fide article.
PRP & KIDS – HANDS/FEET
Ranae G – Brandon, Mississippi; March 25, 2019
PRP & KIDS
Ranae G – Brandon, Mississippi; March 19, 2019
PRP & KIDS
Samantass S – Lithuania; March 10, 2019
PRP & KIDS
Janine R – Medinah, IL; December 8, 2017
PRP & KIDS
Jessica N – Rochester, New York; July 8, 2018
PRP & KIDS
Delanie E – Kalispell, Montana; August 21, 2018
PRP & KIDS
Kerstin F – Frankfurt, Germany; November 3. 2018
PRP & KIDS
Annemi P – Cape Town, Western Cape, South Africa; December 29, 2018
PRP& KIDS
Stephanie D – Colorado; February 27, 2019
PRP & KIDS
Love R – Austin, Texas; February 22, 2019
PRP & KIDS
Stephanie D – Colorado; February 20, 2019
PRP & KIDS
Ginny M – Lexington, SC; February 16, 2019