To resurrect the PRP community’s original newsletter. A total of 24 issues (598 pages) of On the Road … Our Journey from Onset through Remission were published during the period April 2014 through October 2015.
Problem to be addressed
The PRP Alliance does not “push” information to the PRP community. We depend on PRP patients and caregivers to reach out via the the PRP Facebook Support Group with questions (posts) and access the PRP Survival Guide and PRP RareConnect Community and on a need-to-know basis.
Scope
The reformatted online newsletter will present a synopsis/overview of articles with links labeled READ MORE or FULL STORY. Topics will include:
❏½ Diagnosing PRP
❏½ Treating PRP
❏½ Daily Life
❏½ PRP Parents and Children
❏½ PRP and Remission
❏½ PRP Research
❏½ PRP Advocacy
Methodology
The PRP Community will utilize Constant Contact to provide a weekly or bi-weekly update on issues related to the PRP.
Measuring Success
Success will be measured by the following:
❏½ Our ability to publish 26 or 52 issues during the period November 1, 2017 through October 31, 2018.
❏½ Increased number of subscribers
PRP Newsletter Revival