PRP Treatment Options - PRP Alliance

One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the mantra:

“What works for one doesn’t work for all.”

Over the past few years I have taken the opportunity its to amend the oft-quoted Treatment Mantra to reflect a more positive reality:

“What works for one doesn’t work for all,

but if it works for ONE

then there is hope for YOU.”

When a PRP patient or the parent of a PRP child has a question about the efficacy of specific medication, they have had ONE option: to post their question to the 2,200-plus members of the PRP Facebook Support Group and hope for lots of comments. Comments from the Land of Chat are generally forthcoming. Moreover, the odds are pretty good that a comparable question has been asked many times before by others.

UNFORTUNATELY the responses to those earlier, medication-specific posts have never been retained by Facebook in a manner that supports retrieval at a later date. In other words, the many insights and shared experiences regarding a specific medication shared by other PRP Facebookers over an extended period of time are not easily retrieved.

It’s time to build a better mousetrap. WHAT WORKS is that new mousetrap.

There is a way to collect and retain your insights and observations about the efficacy of specific medications and treatment options. Together we can make it easier for other PRP patients and caregivers to learn what we have already learned.

While the focus is on WHAT WORKS, experiences that are less positive should also be shared.

The mechanism with which your experiences are collected is a WHAT WORKS webpage for each medication in the PRP arsenal — a medication that works for someone. Simply “Leave a Reply” to share your insights.

Pick a Treatment Option that worked for you and share that POSITIVE experience.= using “Leave a Reply” at the end of this webpage. I will truncate your name (Bill McCue, Plano, Texas) becomes Bill M — Plano, TX and your comment is archived.

It’s a simple as that.

Questions related to the treatment of PRP with RETINOIDS

What do I need to know about acitretin/Soriatane?

What do I need to know about isotretinoin/Accutane?

WHAT WORKS FEEDBACK—Re: Retinoids

Questions related to the treatment of PRP with IMMUNOSUPPRESANTS

What do I need to know about cyclosporine?

What do I need to know about methotrexate?

WHAT WORKS FEEDBACK—Re: Immunosuppressants

What do I need to know about… MedlinePlus is an online health information resource for patients and their families and friends. It is a service of the National Library of Medicine (NLM), the world’s largest medical library, and a part of the National Institutes of Health (NIH).

Learn about prescription drugs, over-the-counter medicines, dietary supplements, and herbal remedies.

AHFS® Consumer Medication Information from the American Society of Health-System Pharmacists (ASHP) provides extensive information about almost 1,500 name and generic prescription and over-the-counter drugs, including side effects, usual dosage, precautions, and storage for each drug.

✻ certolizumab/Cimzia

WHAT WORKS FEEDBACK—Re: Cimzia

✻ secukinumab/Cosentyx

WHAT WORKS FEEDBACK—Re: secukinumab/Cosentyx

✻ dupilmab/Dupixent

WHAT WORKS FEEDBACK—Re: dupilmab/Dupixent

✻ etanercept/Enbrel

WHAT WORKS FEEDBACK—Re: etanercept/Enbrel

✻ adalimumab/Humira

WHAT WORKS FEEDBACK—Re: adalimumab/Humira

✻ infliximab/Remicade

WHAT WORKS FEEDBACK—Re: infliximab/Remicade