June 2017 - PRP Alliance

What are the SIX “types” of PRP?

The initial five classifications of pityriasis rubra pilaris, were presented to the British Association of Dermatologists in 2003 by Dr. Andrew Griffith, a well-respected London-based dermatologist. His classifications reflected 35 years of diagnosing, treating and researching PRP and have been universally accepted by dermatologists worldwide. According to Griffiths, the PRP patient population can be divided into two categories based on the […]

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Sometimes we need to “Give a Listen”

Daily Life / Bill McCue

From the Editor… There may be a place for music in the treatment of pityriasis rubra pilaris — music that brings peace and solace to the PRP community. This page is an experiment to see what “inspiration” comes our way. If music can soothe the soul, what music might others share. WARNING: Apologies in advance if

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PRP and Stress

Uncategorized / Bill McCue

From the Editor… The National Psoriasis Foundation offers information on stress that may be applicable to pityriasis rubra pilaris. Here are some takeways: ✽ Stress is a common trigger for a psoriasis flare. At the same time, a psoriasis flare can cause stress. ✽ Woman, in particular, seem particularly vulnerable to stress due to psoriasis.According

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Efficacy of Whole Body Cryogenics

Treating PRP / Bill McCue

From the Editor… When a member of the PRP Facebook community asked about cryotherapy as a way to provide relief from pain and itch, I conjured a vision of my dermatologist with the “Cryo Gun” he uses to ZAP potential skin cancer targets. How could that reduce pain and itch? Then I saw the image of a patient in

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Site Map

Uncategorized / Bill McCue

Home Survival Guide Communities Advocacy Leadership About Us Footer Disclaimer Copyright Notice Privacy Terms of Use Site Map

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Terms of Use

Uncategorized / Bill McCue

Welcome to the PRP (Pityriasis Rubra Pilaris) website. By continuing to browse this website you are agreeing to comply with and be bound by the following terms and conditions of use. These terms, along with our privacy policy, govern the relationship between the PRP Alliance and users of this website. The term “PRP Alliance” or

Copyright Notice

Uncategorized / Bill McCue

All rights reserved © 2013, 2014, 2015, 2016, 2017 by PRP Alliance, Inc., Plano, Texas. The contents of this website cannot be reproduced or copied in any manner other than electronically, and only to the extent necessary to read it on the World Wide Web. The information presented at the PRP Alliance website may not

Disclaimer

Uncategorized / Bill McCue

General The PRP (Pityriasis Rubra Pilaris) Alliance website is designed for educational purposes only and not for the purpose of rendering medical advice. It is not the intention of the PRP Alliance website to provide specific medical advice, but rather to provide users with information to better understand their disease and treatment options. Because each

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Privacy Statement

Uncategorized / Bill McCue

SCOPE The PRP Alliance (PRPA) is a nonprofit 501(c)(3) tax-exempt organization devoted to assisting individuals diagnosed with the pityriasis rubra pilaris (PRP) and their caregivers. PRPA provides information and education to both the lay and the professional communities, advocates on behalf of its members in the political and healthcare arenas, and serves as a “bridge”

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Clothing — Delasco

Uncategorized / Bill McCue

From the Editor… On January 26, 2017, Jan T (Ringwood, NJ), posted a message to members of the PRP Facebook Support Group regarding clothing. The feedback she received is well worth including in the PRP Survival Guide. I have attended three annual meetings of the American Academy of Dermatology (Denver, San Francisco and Orlando). Delasco always has

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