May 2018

As you all know, I began building a PRP database during the Spring of 2013 in an effort to inspire researchers in dermatology to focus their attention on PRP. I believed then, as I do now, that a robust PRP Community Database would become a channel of communication no researcher could replicate. It’s part of

HOLD FOR RELEASE Pityriasis rubra pilaris (PRP) is a rare skin disease of unknown etiology, which medically is often difficult to treat. For a patient with PRP, the disease can completely alter one’s ability to work and attend school. Quality of life is often greatly reduced, and many patients experience profound psychological impact due to

Editor’s Note: Before we start — have you completed your PRP Patient Profile yet? Go directly to: https://conta.cc/2IOBEUA or learn why your PRP patient profile is so important.   There have been two recent questions, each embedded in an unrelated post. PRP Facebookers: Leith W (Queensland, Australia) and Marilyn C (Irvington, AL) asked: How do I find

From the Editor… Nearly two years ago (May 17, 2017) I received an email from Dr. Teri Greiling,  Assistant Professor of Dermatology at Oregon Health and Science University in Portland, Oregon. Like every PRP patient and caregiver, Dr. Greiling lamented the fact that not a single therapeutic trial had ever been conducted for patients with PRP. She also

For most patients and caregivers, a diagnosis of pityriasis rubra pilaris results in a search of the internet.  Dr. Google and Dr. Yahoo confirm that PRP is a rare skin disorder that may develop during childhood or adulthood. With great redundancy we are told the following: ✔︎  Adult onset accounts for 55% of the “active” PRP patient

During the first 15 days of our 45-day campaign to update 1,000 PRP patient profiles, we reached out to 1,607 patients or caregivers. The good news — we are one-third of the way to reaching our goal. The first observation worthy of note is that 75% of those who have responded thus far are members of the PRP