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From the Editor
The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge.
Share what you have learned about the value of HANDICAP PARKING as a patient or caregiver. Use “Leave a Reply” to share.
My onset date was early August, 2012. By late October my mobility was already impaired. I was a passenger rather than a driver. Hospitalized in early November, I didn’t leave the house for almost two months. By mid-January I was able to drive myself to the local Walmart. It was then I got a handicap placard. Six months later my mobility was nearly 100 percent and handicap parking seemed inappropriate. I considered it a Healing Milestone.
On March 19, 2019, Tierney R (Virginia Beach) started a conversation where she lamented the fact that she had been unable to acquire a handicap placard . She wrote: “I was unable to get approved for disability and therefore a handicap parking placard, so my husband (Charlie) drops me off at the door and picks me up there also. While I would like a little more exercise, but not as far away as he has to park.
Karen A, Sarasota, Florida
When my feet were at thier worst my MD wrote up for a temporary disable parking hanger. I took it to the DMV and they issued it to me for a few years. Helped immensely.
Karen B, Richester, New York
You can go right online under DMV, and get your local ticket requirements. I have to go to my town hall every six months and have them sign off on it. A permanent placard goes through the DMV. I have a temporary handicap sticker temporary. I need my podiatrist to sign off on it but I’m still fighting with my doctor for full-time disability.
Lisa F, Gering, Nebraska
A handicap placard would be very helpful to those in that stage where walking is painful. Wish I would have gotten one!
Tami L C, St. Paul, Minnesota
I had gotten a temporary handicap placard also, when the soles of my feet fell off.
Debbie R, Calgary, Alberta, Canada
I have the disability parking card for my vehicle and have had it since my PRP journey began. My doctor filled out the form from the motor vehicle branch to get a card for five years due to my swollen, cracking feet and the difficulty it caused me when walking.
Alan B, Lakeland, Florida
When the skin behind my knees became thin and cracked open and my feet were a mess. My wife got a placard for me with a simple note from the doctor. Made small trips to the store and pharmacy much less painful
Stephen S, Plano, Texas
I have a temp handicap placard. My dermatologist is really great when i feel i need one for short term. I am also on SSDI. i have no idea how i was apprved so fast on first try. Only took 4 1/2 months. Right now work is out of the question. I didn’t know it could be so easy to get a disabled parking hanger.
PRP TAKEAWAY:
If your mobility is impaired and walking is painful, apply for a handicap placard TODAY.
I felt a bit of guilt (and experienced some raised eyebrows) about using my handicap plate. Not all disabilities are visible and no one knows your journey but you. If you can get out of your car and walk without a cane or wheelchair, it might seem to an outsider that the plate is not necessary, but your right to accessible parking is something between you and your doctor, not them. PRP is HARD. If something makes your path even a little easier, take it. Don’t avoid going to the store or pharmacy out of embarrassment, that trip out into the world is important!