From the Editor…
For those who accept the prevalence estimates established by Dr. Griffiths in March 2003, juvenile onset PRP represents 45% of the patient population.
The PRP Community Census has Identified 149 PRP patients who have reported a diagnosis of juvenile onset PRP. Considering the fact that 817 PRP patients have not indicated whether they are adult or juvenile, there are a few more hiding in the weeds.
Among the 149 who have confirmed juvenile onset, a total of 121 (81.2%) have confirmed an onset age.
1 to < 2 – 6
2 to < 3 – 11
3 to < 4 – 21
4 to < 5 – 15
5 to < 6 – 5
6 to < 7 – 10
7 to < 8 – 4
8 to < 9 – 11
9 to < 10 – 7
10 to < 11 – 7
11 to < 12 – 4
12 to < 13 – 1
13 to < 14 – 1
14 to < 15 – 6
15 to < 16 – 2
16 to < 17 – 3
17 to < 18 – 4
18 to < 19 – 2
19 to < 20 – 1
From time to time these numbers will be updated as more PRP parents identify themselves and include the onset age.
The PRP Patient Population – Juvenile Onset