Bill McCue

Rare Skin Disease Advocates in Canada It’s hard to rise above the noise level in the world of rare disease advocacy with only 99 PRP patients in Canada. The folks with psoriasis number over one million. That’s why it is important to find kindred spirits. There are four organizations that offer opportunities for the PRP

Access to the Canadian Registry of PRP-savvy Dermatologists The PRP Survival Guide outlines in great detail how a PRP patient can find a dermatologist in the US and ways to identify those that are or could be PRP savvy. There are at least four reasons to seek out a PRP-savvy dermatologist: ❏½ To find a

Access to Financial Relief and Support in Canada Editor’s Note: Murray Rose wants to better understand the challenges PRP patients in Canada face when attempting to get financial relief and support. Some of what he will learn is available on the Government of Canada website. But the best information is what he will hopefully learn

Access to Affordable PRP Treatment When a Canadian is diagnosed with pityriasis rubra pilaris, is there a national treatment protocol? In New Zealand, for example, all things equal, the first prescription a patient diagnosed with PRP receives is for 25mg of acitretin. Are their similar protocols in Canada? What affordable treatment options are available to

PRP Treatment Protocol In Canada We have heard the mantra: What works for one doesn’t work for all. The being the case, what are the medications most prescribed to Canadians for the treatment of PRP? How effective have those medications been? Is there any research to support any findings? Retinoids ❇︎ acitretin ❇︎ isotretin Immunosuppressants

The Metrics of PRP in Canada Data is the currency of research. The more data we have, the more data we can share. It is hoped that PRP Canada, with a PRP patient population of less than 100, will provide an opportunity to decrease the missing date. ❇︎ Patient name: 99 ❇︎ Location, City/town: 86

. x PRP Canada is neither an affiliate, chapter nor division of the PRP Alliance. It would be more properly described as an outpost or branch of the PRP Global Community. The following is the initial framework for PRP Canada. Click any link to learn more. Remember, if you are a Canadian diagnosed with PRP

Editor’s Note: Richard L, Lansdale, Pennsylvania, helped proofread the July issue of On the Road. While reading the article “What Did OHSU Research Lean about PRP and Taltz?” he thought that the term “single-arm trial” should be defined (Paragraph 2). While I agreed, there was simply no space to add 99 more words. Creating this

ROADSIDE EMERGENCY KIT If pityriasis rubra pilaris is best described as a journey, then we, as travelers, should prepare for the inevitable emergencies that will befall us en route. ❏½ NORD PRP Report: Keep two copies: one for you and one for the person with a “Need to Know”. It might be family member, your