Editor’s Note – When the PRP community howls at the moon and we are thinking HANDS, we are thinking about palms, fingers, fingernails, dexterity, pain, itch, appearance and more. On June 26, 2018 Beth R from Bristol, England posted the following: “I still have very thick leathery palms and soles but it is the hands […]
In 2018, Dr. Teri Greiling, a dermatologist at Oregon Health and Science University, embarked on a research project to investigate the clinical response and safety of ixekizumab (brand name Taltz®) in treating for moderate to severe pityriasis rubra pilaris. The research was described as a single-arm, investigator-initiated trial conducted in adult patients with moderate to
OHSU PRP Research Findings: July 2020 Read More »
From the Editor… If you would like to submit a “Statement of HOPE” for inclusion in the PRP Survival Guide, please use “Leave a Reply” at the end of this webpage. Alan B, LakeLAND, Florida, USA Snippet of Hope I was scared when my PRP journey began. Why me? How long will this journey last.
How much do you really know about pityriasis rubra pilaris? What if you had the opportunity to test your knowledge against the infamous JEOPARDY! game board with it’s six categories, each category with five questions valued at $100, $200, $300, $400 and $500 respectively. How many of the 36 questions could you answer correctly? History
JEOPARDY! PRP EDITION Read More »
What are the fiscal challenges of PRP? PRP patients and caregivers understand the physical challenges of PRP. We all know itch. We all know pain. We know the impact PRP has on vision, mobility, dexterity, and sleep. While the treatment protocols may vary in effectiveness, we can generally call upon healthcare professionals to help us
Fiscal Challenges of PRP Read More »
From the Editor The challenges we face to body, mind and spirit can be debilitating, demoralizing, and de-mobilizing. Of ALL the symptoms of pityriasis rubra pilaris I had to endure during my 20-month journey, it was my feet and the impairments to my mobility that topped my list. Swollen. Cracked. Bleeding. Painful. However, once my
PRP Gallery of Photos — FEET Read More »
So you think you want to help. I hope you will. From the Editor – On the Road…Our Journey from Onset through Remission is NOT a scholarly journal. The 12-page newsletter represents, however, the collective experiences, insights and observations of PRP patients and caregivers. It deserves a Peer Review by PRP patients and caregivers BEFORE
OTR Peer Review, June 2020 Read More »
This is a “landing page” for an article in the June 2020 issue of On the Road … Our journey from Onset through Remission. “Leave a Reply” below and I will confirm when this page is ready to review. Bill McCue
Landing Page Under Construction Read More »
Information previously found on this webpage has been updated, revised and enhanced. CLICK HERE to access new webpage.
It’s Time to Think Feet and HOWL ❖ Read More »
Message From Bill McCue, Editor IMPORTANT: If you have been hurt financially by PRP and/or COVID-19, please do NOT bother reading this message. Just remember the mantra: Stay safe. One day at a time. I have successfully renewed three domains (prpAlliance.com, prpAlliance.org and prpSurvivalGuide.org) that support our PRP global community. We are good for
The $20.20 Campaign Read More »