Bill McCue

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. However, my responsibility to the global PRP community is to give everyone – including you – the opportunity to […]

I’ve never had a problem asking for money for a worthy cause … and I certainly consider PRP Awareness Month a worthy cause. My approach to fundraising assumes that everyone has the right to say “No”. However, my responsibility to the global PRP community is to give everyone – including you – should have the

Why is dupilumab prescribed? Dupilumab injection is used to treat the symptoms of eczema (atopic dermatitis; a skin disease that causes the skin to be dry and itchy and to sometimes develop red, scaly rashes) in adults who cannot use other medications for their condition or whose eczema has not responded to other medications. Dupilumab

by Bill McCue On May 16, 2019, Christina W (Wylie, TX) posted that she had an unscheduled Meet & Greet with Doug F (The Colony, TX) on May 15, 2019. Face-to-face Meet & Greets are not as rare as pityriasis rubra pilaris, but as radio legend Paul Harvey would say, “You need to hear the

TOPIC: Remission (Endgame) Posted by Ron A – East Sussex , England (12/28/2017) Let’s talk about remission. How long does it take? Christine G– Zürich, Switzerland Sorry, I am the first one who respond to your post and I am the one who will probably bring the not so good news. Juvenile onset is some

Editor’s Note: Once diagnosed with pityriasis rubra pilaris, patients face the daily challenges of body, mind and spirit. The PRP Art Gallery provides an outlet for the graphic representation of our journey. Other links to soothe the spirit of all PRP travelers. ❏½ inspiration ❏½ poetry, PRP ❏½ humor – or is it humour? PRP

From the Editor… Having written 24 PRP community newsletters (598 pages) during the period April 1, 2014 to October 1, 2015, the prospect of writing eight more issues between now (May, 2019) and December) gives me pause. Suffice it to say, the effort requires an extra and sustained commitment of time and effort. The May

From the Editor… When I was diagnosed with pityriasis rubra pilaris on November 28, 2012, my evening was spent searching the internet. I was not pleased with the redundancy, medical jargon and “rat holes” into which I fell. At some point that evening I accessed a 1,200- plus word overview of PRP. Even though it