From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned as a PRP […]
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned as a PRP caregiver. Share articles
PRP and Caregivers Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned as a PRP patient or caregiver
INDEX — blood work and labs Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned as a PRP patient or caregiver
PRP, Bathing and Showering Read More »
From the Editor The PRP Survival Guide is a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. We need to harvest that knowledge for those in need of enlightenment. Share what you have learned about PRP as
INDEX — PRP and the ADA Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Share what you have learned about PRP and alcohol as a
Editor’s Note: For nearly 12 months I was prescribed acitretin (25mg – 50mg) and I applied prescribed topical creams: Clobetasol (palms and soles), Desonide (face and ears) and triamcinolone (everything else). While the PRP community discusses over-the-counter moisturizers, there is very little discussion of prescribed topicals. Perhaps this post will help jumpstart that discussion. Triamcinolone
What do I need to know about prescribed topicals? Read More »
Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the worldwide PRP community. As a global community we are confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look it – a diagnosis supporting clinical observations is the result. Grand Rounds We have no
Advocacy issues related to diagnosing PRP Read More »
From the Editor… Prior to November 2013, there was no concerted effort by healthcare professionals or PRP patients to gather information about the PRP community. The first PRP Global Census was based on a mailing list extracted from over 29,000 emails archived by the PRP Support Group founded in 1997. As a member/subscriber to the
How do we track the Global PRP Community? Read More »