Bill McCue

04.51.02 What resources are available to PRP patients and their caregivers? PRP (Pityriasis Rubra Pilaris) Answers In April 1, 2014, the PRP Survival Guide was officially launched. The objective was to provide a repository of easy-to-access information specifically related to the onset, diagnosis, treatment, remission and/or maintenance of pityriasis rubra pilaris. The PRP Survival Guide […]

04.51.00 relapses, setbacks

04.49.03 Testimonials on RareConnect Christine Günther shared a link. March 28, 2017 Hi to all, I am so happy that many new members have found their way to this marvellous group! Like you might know, I am the mother of a 7-year-old happy little PRPer who has dealt with her PRP for more than 3.5

From the Editor … In March 2014, the members of the PRP Facebook Support Group were asked the question: Why should a PRP patient join the PRP Facebook community share? The 11 reasons listed below were the result of the 19 patients and caregivers who responded. They are just as valid for the PRP Community

04.45.00 nutrition and dieting 04.45.01 Diet Eat healthy! No dieting for now, because your body needs nutrients to replenish those that you are losing through your skin. Go heavy on the vegetables and fruits and fresh foods. Avoid salty items like potato chips which can cause edema and have no nutritional value. Eat plenty of

04.43.00 mobility, impaired

04.42.00 mental health and wellness 04.42.01 EMOTIONAL CONCERNS? There are so many to cover under this heading. Our emotional health is every bit as important as our physical well-being, and you cannot separate the two. When you are dealing with any disease, it is difficult to be your natural optimistic self, but when you are

04.41.01 We are not alone and I can prove it As published in On the Road… (April 1, 2014, page 3) by Bill McCue Meet & Greet On Sunday, January 19, 2014, Lindsay Sprick and Virginia “Ginny” Maxwell met for brunch at the 116 Expresso Wine Bar in Columbia, South Carolina. A month later the

04.41.00 Meet & Greet, FaceTime, Skype Face-to-face Facetime Facebook Vide Skype Oovoo GoToMeeting