From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.“ Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one […]
What Works — Dupixent Read More »
From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.“ Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one
What Works — Cosentyx® Read More »
From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.“ Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one
What Works — certolizumab/Cimzia Read More »
From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.“ Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one
What Works — Immunosuppressants Read More »
From the Editor One of the many frustrating aspects associated with pityriasis rubra pilaris is reflected in the following mantra: “What works for one doesn’t work for all.“ Over the past few years, however, I have taken the opportunity its to amend the Treatment Mantra to reflect a more positive reality: “What works for one
What Works — Retinoids: Acitretin & Isotretinoin Read More »
(1) Murray R – Surrey, British Columbia, Canada Today is one that I have been waiting for what seems like years. Actually it is years! 3 years and 8 months, to be exact, since I first spotted that little red spot on my shoulder while sitting outside on a beautiful hot day accompanied by my
FROM THE EDITOR The Lion’s Share of information presented in PRP 101 comes from Land of Chat posts and comments. The purpose of “In the Queue” is to provide a staging area for the collection and processing of PRP patient and caregiver sights and observations. The post(s) listed below are “In the Queue” for content
In the Queue — Endgame (Remission) Read More »
One of the many goals included in the 2020-2021 Advocacy Plan is to designate a PRP patient or caregiver to represent the interests of the PRP community as a PRP Advocate to a “local” Dermatology Teaching Hospital. Please use “Leave a Reply” at the end of this webpage to learn more about this program. ALABAMA
Dermatology Teaching Hospitals in the US Read More »
Bill McCuePityriasis Rubra Pilaris (PRP) · **RE: VACUUM CLEANERS** When it comes to managing expectations, every PRP patient and his or her family – eventually realizes that the flaking skin cascading daily from our bodies will eventually fall victim to gravity and end up on a floor. Over the years I have heard
How is pityriasis rubra pilaris pronounced? This is not as stupid question as it might sound. When a dermatologist confirms the diagnosis as “pityriasis rubra pilaris or PRP” we too often hear only the acronym “PRP”. That’s easy to say. I confirmed the proper spelling of pityriasis rubra pilaris from the paperwork I brought home