What is a Medical Diagnosis? A MEDICAL DIAGNOSIS is based on information from sources such as findings from a physical examination, an interview with the patient or family or both, a medical history of the patient and family, and clinical findings as reported by laboratory tests and radiologic studies. A differential diagnosis is a process […]
Diagnosing PRP — More Stuff to Ponder Read More »
From the Editor… I have been working on a revision of the PRP Report in the Rare Disease Database hosted by the National Organization of Rare Disorders. The topic of “SIGNS & SYMPTOMS” presented a particularly challenging dilemma. I simply did not know the difference. I thought the terms were redundant. I was wrong I
Signs And Symptoms — What’s the difference? Read More »
From the Editor… From the perspective of a PRP patient or caregiver, the definition of DIFFERENTIAL DIAGNOSIS is: Any alternative diagnosis that precedes the enlightened diagnosis of pityriasis rubra pilaris. The PRP community is painfully aware of the challenges faced by both dermatologists and dermatopathologists in the timely diagnosis of PRP. (1) What symptoms are
From the Editor… If pityriasis rubra pilaris is, in fact, an autoimmune disease, then supporting the American Autoimmune Related Diseases Association would seem like an appropriate path forward. It was on this basis that I approached the AARDA in 2015 intent upon having the PRP Alliance join. It became clear, however, that it was the
AARDA does not considers PRP an autoimmune disease Read More »
From the Editor… The Genetic and Rare Diseases Information Center once again provides patient-friendly information. Their “coverage” of autoinflammatory Diseases meets that standard. The following information is dated January 2017. If you REALLY want to know about autoinflammatory diseases, this is worth a cup of coffee and some “Quiet Time”. Autoinflammatory diseases are a relatively
Understanding Autoinflammatory Diseases — GARD Read More »
The initial five classifications of pityriasis rubra pilaris, were presented to the British Association of Dermatologists in 2003 by Dr. Andrew Griffith, a well-respected London-based dermatologist. His classifications reflected 35 years of diagnosing, treating and researching PRP and have been universally accepted by dermatologists worldwide. According to Griffiths, the PRP patient population can be divided
What are the SIX “types” of PRP? Read More »
From the Editor… As a rule, PRP patients and caregivers are given the proper spelling of pityriasis rubra pillars, the acronym “PRP” and a referral to Dr. Internet. Some of us reach out to Dr. Yahoo. Others seek out Dr. Google. It doesn’t take long for us to learn that using PRP doesn’t work. Enter
Asking Dr. Google? Read More »
Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the worldwide PRP community. As a global community we are confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look it – a diagnosis supporting clinical observations is the result. Grand Rounds We have no
Advocacy issues related to diagnosing PRP Read More »
Orphanet maintains the Orphanet nomenclature of rare diseases, essential in improving the visibility of rare diseases in health and research information systems: each disease in Orphanet is attributed a unique and stable identifier, the ORPHA number. Orphanet uses the European definition of a rare disease, as defined by the European Union Regulation on Orphan Medicinal
What is the ORPHA number for pityriasis rubra pilaris? Read More »
EDITOR’S NOTE: The more we know about the business of dermatology and the regulations which impact the delivery of services business, the more likely we are to understand the challenges they face. The following article was published in the October 2015 issue of On the Road…. The diagnosis and treatment of PRP involves patient and
Were dermatologists ready for ICD-10? Read More »