Diagnosing PRP

In January 2015, Eva Bearryman, Junior Communications Manager, EURORDIS, posted the following article about the codification of rare diseases. This is one of those issues where the worldwide PRP community willingly observes from afar. However, knowing how skin diseases are coded helps us understand where we fit in the rare skin disease puzzle. <><><><><><><><><><><><><> Codification […]

Editor’s Note: The following information has been provided by the Genetic and Disease Information Center to healthcare professionals regarding ICD Coding for Rare Diseases. We include this article in the PRP Survival Guide (Chapter 1) to help PRP patients and caregivers better understand the regulatory challenges under which dermatologists and other healthcare professionals must function.

Editor’s Note: We start with two aspects of “life threatening”. (1) A misdiagnosis of PRP when the real malady is Sézary syndrome (Cutaneous T-cell lymphoma) where treatment is delayed. (2) The depression that results from PRP. I remember a family reunion from Christmas, 2012 (scheduled before my PRP onset). I was in the Hell &

Editor’s Note: The adage about teaching an “old dog” and “new tricks” took an unexpected twist in Denver during the annual meeting of the American Association of Dermatologists. Turning 68 in May, this “old dog” didn’t learn a new trick; he learned a new word: iatrogenic. As published in The Road Less Traveled… (April 15,

Source: From FOX NEWS Insider (April 10, 2017 // 4:35pm) as seen on Shepard Smith Reporting) A recent study found that nearly 90 percent of medical patients who come to the Mayo Clinic for a ‘second opinion’ get a completely new diagnosis. Eighty-eight percent of people who visit the renowned Minnesota clinic for a second

EDITOR’S NOTE The follow information was “harvested” from HealthLeaders Media with Editorial Offices in Brentwood, TN. HealthLeaders Media targets healthcare executives and professionals. Written by Cheryl Clark and published on January 8, 2015, the article details 13 of the top healthcare quality issues for 2015. Measuring misdiagnosis was listed first. This seemed like a topic

From the Editor… According to an article written by Alexandra Sufferlin, a writer and producer for Time Healthland and published on April 24, 2013, diagnostic errors are the most common type of medical mistake. In fact, missed diagnoses out-ranked medication overdoses and surgical mistakes in causing the most patient harm. She writes: When Dr. David

During the summer of 2013, a total of 487 PRP patients were polled by email and given an opportunity to participate in a first-of-its-kind PRP Biopsy Poll. Remarkably, a total of 256 invitees (52.6%) shared their biopsy experiences and/or recollections. ❏½ Dx with no biopsy ordered: 7.8% ❏½ Dx with no contradictory biopsy: 45.3% ❏½

Editor’s Note: After four years of asking questions about PRP, the efforts of dermatopathologists remains an enigma. I have asked questions but the words I hear are like those spoken by adults in a Charlie Brown cartoon. All I hear is “Wah wah wah wah wah wah.” That’s when I feel like Snoopy. The following