PRP Advocacy

Editor’s Note: The Canadian Registry of PRP-Savvy Dermatologists is an ongoing effort of PRP Canada. To be listed as PRP, a dermatologist must be nominated by a either a PRP patient or the caregiver of a PRP patient. Another way to “make the list” is for a teaching hospital to identify a PRP -savvy dermatologist.

    PRP Canada is best defined as serving the needs of ALL Canadians, even those Canadians who are not members of the PRP Facebook Support Group. ALL Canadians are part of the PRP Global Community. Remember, the PRP Alliance has NO members and the PRP Survival Guide has neither members nor subscribers. To join

A CANADIAN REGISTRY OF PRP-SAVVY DERMATOLOGISTS With a prevalence rate of one in 400,000, pityriasis rubra pilaris is an ultra rare skin disorder. It has been estimated that only 1 out of 20 dermatologists will ever have one of us as a patient. The Canadian Registry of PRP-savvy Dermatologists will be an online resource for

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Rare Skin Disease Advocates in Canada It’s hard to rise above the noise level in the world of rare disease advocacy with only 99 PRP patients in Canada. The folks with psoriasis number over one million. That’s why it is important to find kindred spirits. There are four organizations that offer opportunities for the PRP

Access to the Canadian Registry of PRP-savvy Dermatologists The PRP Survival Guide outlines in great detail how a PRP patient can find a dermatologist in the US and ways to identify those that are or could be PRP savvy. There are at least four reasons to seek out a PRP-savvy dermatologist: ❏½ To find a