“How long does it take to get from ONSET to REMISSION?” It’s a pretty common question whether the PRP patient has been diagnosed with Adult Onset PRP or Juvenile Onset PRP. When James Shooter walked into St. Bartholomew Hospital in 1828, our disease didn’t have a name. However, I venture that he askednhisdoctor: “How […]
Stewart Littlejohn Versus Her Majesty’s Courts and Tribunal Services From the Editor – Stewart Littlejohn has had PRP since June 2017. Unable to work as a chauffeur, he requested UK Employment Support Allowance. Her Majesty’s Courts and Tribunal Service properly convened a 3-person panel to decide Stewart’s fate. The following memorandum was carefully crafted by
Anatomy of Her Majesty’s Memorandum Read More »
From the Editor (updated 10/16/2020) – The PRP patient database began during the summer of 2013 and has grown to include 2,240 records of which 1,860 are members of the PRP Facebook Support Group and 380 are non-aligned but have a valid email address. Each PRP patient profile focuses on seven datapoints we classify as
7 Reasons Why Your PRP Profile Is Critical Read More »
Editor’s Note: Every so often a member of the PRP Facebook Community shares an inspirational message that should be saved for others to experience. This is the webpage where such messages can be archived for all. The message which has been embedded in the graphic is repeated beneath the image to facilitate translation into over
PRP Gallery of Inspirations Read More »
There is no excerpt because this is a protected post.
Protected: Missing Onset Date and/or Onset Age Read More »
Editor’s Note The following article appeared in MedicalNewsToday. It was written by Jenna Fletcher and reviewed by Natalie Butler, RD, LD (Sun 3 December 2017). I converted to the PRP Survival Guide so that PRP patients and caregivers can take advantage of the TRANSLATE button. ❏½ What is an anti-inflammatory diet? ❏½ What conditions can
Diet — Anti-inflammatory diet: What to know Read More »
Why is guselkumab prescribed? Guselkumab injection is used to treat moderate to severe plaque psoriasis (a skin disease in which red, scaly patches form on some areas of the body) in people whose psoriasis is too severe to be treated by topical medications alone. Guselkumab injection is in a class of medications called monoclonal antibodies.
What do I need to know about guselkumab/Tremfya? Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we are best positioned to harvest that knowledge. Share what you have learned about financial aid
Financial Assistance Read More »
From the Editor The first step in the development of a newsletter to serve the needs of the Global PRP Community is to understand our resources. The global PRP community has four pillars of communication. Each pillar serves a specific purpose. Pillar #1 – PRP Facebook Support Group With a current membership of 1,532, the
The Four Pillars of PRP Communication Read More »
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Protected: PRP Report Version 1 Read More »