From the Editor… As a rule, PRP patients and caregivers are given the proper spelling of pityriasis rubra pillars, the acronym “PRP” and a referral to Dr. Internet. Some of us reach out to Dr. Yahoo. Others seek out Dr. Google. It doesn’t take long for us to learn that using PRP doesn’t work. Enter “PRP” and the […]
Asking Dr. Google? Read More »
From the Editor… There are so many activities that could lessen the burden of pityriasis rubra pilaris on the body, mind and spirit of PRP patient and caregivers. ✽ Some efforts may be undertaken by one person; other efforts will require a group. ✽ Some activities can be accomplished at no cost, others will require funding.
PRP Advocacy Agenda: June 2017 Read More »
Editor’s Note: The following information about the role of patient advocates was recently “harvested” from the National Patient Safety Foundation, Boston, MA. The PDF seemed to reflect the needs of PRP patients worldwide. The PRP Survival Guide uses the term “caregiver” while folks in the UK and elsewhere use the term “carer”. I would submit that a patient advocate is
What is a patient advocate? Read More »
Under Revision The word advocacy has been around for quite some time. ✽ Middle English and Old French advocacie ✽ Medieval Latin advocatia ✽ Classical Latin advocatus From the perspective of a patient diagnosed with pityriasis rubra pilaris, there are six levels of advocacy. But let’s start with a composite definition of advocacy. ✽ Advocacy is an act or process that
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Editor’s Note: The timely and accurate diagnosis of pityriasis rubra pilaris is a goal shared by the worldwide PRP community. As a global community we are confident that when a dermatologist suspects PRP and specifically instructs the dermatopathologist to look it — a diagnosis supporting clinical observations is the result. Grand Rounds We have no choice but
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37. PRP Survival Guide. Chapter 7 — PRP Research. http://prpsurvivalguide.org/2017/05/21/chapter-6-prp-research/
Chapter 6 PRP Research Read More »
When a PRP patient looks up “pityriasis rubra pilaris in Google, DermNetNZ.org is typically #1 in the Top 10 of websites found. New Zealand is a country with with a population of 4.6 million and only 62 dermatologists. There is an estimated “active” PRP patient population of only 12. DermNet New Zealand claims to be “The world’s most popular online
DermNet New Zealand Read More »
07.05.01 — British Association of Dermatologists British Association of Dermatologists (BAD)
British Association of Dermatologists Read More »
07.04.03 — Society for Investigative Dermatology Society for Investigative Dermatology (SID) Home The Society for Investigative Dermatology was born out of a vision to serve a segment of science previously unrepresented by the medical societies of the United States: investigative dermatology. The founders saw a need for an organization with a devotion to cutaneous investigation,
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07.04.02 — Society of Dermatology Physician Assistants Society of Dermatology Physician Assistants (SOPA) http://www.dermpa.org The Society of Dermatology Physician Assistants (SDPA) is a 501c6 non-profit professional organization composed of members who provide dermatologic care or have an interest in the medical specialty of dermatology. Its Fellow members are PAs who provide medical services with the
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