From the Editor Much to the frustration of the PRP community, the answer is “No”, although genetic factors, an abnormal immune response, or vitamin A deficiency may be involved. Based on conversations within the PRP community, we can say with metaphysical certitude that PRP isn’t a punishment for misbehavior or forgetting to put the seat […]
Do we know what causes PRP? Read More »
ACKNOWLEDGMENT NORD gratefully acknowledges the following for their assistance in preparing this report: Mark Lebwolh MD, Chairman, Dermatology Department, Icahn Medical School, Mount Sinai Hospital, New York, NY; Jouni Uitto MD, PhD Professor and Chair, Department of Dermatology and Cutaneous Biology. Thomas Jefferson University, Philadelphia, PA; Nicholas A Ross, MD, Lead Investigator and Resident Physician,
Pityriasis Rubra Pilaris Draft for NORD Read More »
From the Editor… My first PRP Awareness Day was November 28, 2012 and quite “unofficial” by any standards. It began with a phone call from my dermatologist’s office. I was told that the appearance of a red spot on my forehead on August 8 — nearly four months prior — had been the onset of pityriasis rubra pilaris. Like
PRP Awareness Month Read More »
From the Editor… As a new member of the PRP Facebook Support Group — Steve B (Cambridge, England, UK) had observed that the onset of PRP seemed to occur more frequently during the months of February to May. While Steve’s conclusion was based on the comments of a few, perhaps the PRP Community Database could shed some
PRP Onset by Month Read More »
From the Editor… Several members of the PRP Facebook Support Group have recently attempted to conduct surveys using the Facebook polling feature. They — and many others over the past four years — are to be applauded for their curiosity and initiative. No matter how basic or complex the poll or survey, there are three basic tasks to perform.
2017 PRP Resources Survey Read More »
From the Editor… While the “harvesting” of information about PRP patients began in May 2013, it wasn’t until the following November when the first PRP Worldwide Census was undertaken. Collecting “core data” from PRP patients has always been a challenge. Over the past four years, the following data has be harvested from PRP patient and
PRP Community Update: August 1, 2017 Read More »
What is a Medical Diagnosis? A MEDICAL DIAGNOSIS is based on information from sources such as findings from a physical examination, an interview with the patient or family or both, a medical history of the patient and family, and clinical findings as reported by laboratory tests and radiologic studies. A differential diagnosis is a process of weighing the probability
Diagnosing PRP — More Stuff to Ponder Read More »
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Signs & Symptoms The terms “sign” and “symptom” are not redundant. A SIGN is subjective, e.g., pain,
RDB — Signs & Symptoms Read More »
From the Editor… Please use the “Leave a Reply” comment box on this webpage to offer your suggestions, identify errors of omission and commission, or to make ANY comments that might help us create a more useful guide for the PRP community. Summary Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that cause
From the Editor… With one notable exception, the status of PRP research is a source of concern among the PRP patient population. A search of ClinicalTrials.gov, for example, retrieves only one entry. A pilot study to determine the efficacy of a biologic medication was started at Icahn School of Medicine at Mount Sinai in New York. They registered
RDB — Investigative Therapies Read More »