The topic of PRP and PETS has been researched. Tierney R (Virginia Beach, Virginia) created a poll on January 2, 2018. Who has pets in their home? And do you think having pets in your home affects your PRP? Who doesn’t have pets because you think it might cause your PRP to worsen? 59 had dogs, […]
From the Editor Every so often I lament the fact that after (or in spite of) six years of effort I have been unable to create or inspire a community of PRP parents within the PRP Facebook Community. That hasn’t stopped me from raising the issue again in hopes that a Coalition of PRP Parents
PRP Parents & Kids Read More »
From the Editor… The light has finally been turned on. As of September 20, the National Organization of Rare Disorders (NORD) has replaced the 2007 PRP Report with the 2017 revision. We now have a beacon of hope for PRP patients and caregivers to find as they travel the uncharted waters of pityriasis rubra pilaris.
Genesis of the NORD PRP Report Read More »
It took almost four months, two dermatologists, and six days in a hospital bed to be “officially” diagnosed with pityriasis rubra pilaris. It took only four more days for me to conclude that I had embarked on a three to five-year journey that would ultimately end with remission. Fortunately, my journey lasted only 20 months. I
PRP 101 — The Endgame Read More »
Editor’s Note: According to the Mayo Clinic, a runny nose is excess nasal drainage. It may be a thin clear fluid, thick mucus, or something in between. The drainage may run out of your nose, down the back of your throat or both. Here’s what we already know. A runny nose is a common occurrence among PRP
PRP and a Runny Nose Read More »
There is no excerpt because this is a protected post.
Protected: PRP and the Absence of Mucous Read More »
Those who spend time any time reading the PRP Survival Guide or perusing the posts and comments shared by members of the PRP Facebook Support Group will see references to the challenges to body, mind and spirit associated with pityriasis rubra pilaris. PRP is a burden on every square inch of our bodies. Moreover, our minds must
What are the challenges of PRP? Read More »
✔︎ Questions related to FEET FEET AND MOBILITY FOOTWEAR SKIN REMOVAL STRATEGIES HANDICAP PARKING PHOTO GALLERY OF FEET
PRP 101 — TEMP GATEWAY TO “FEET” Read More »
From the Editor The PRP Survival Guide is designed to be a repository of experiences and insights shared by PRP patients and their caregivers. Collectively, the PRP community possesses a wealth of practical knowledge about pityriasis rubra pilaris. Only we can harvest that knowledge. Please share what you have learned about PRP and Skin Removal Strategies as a
Feet: Skin Removal Strategies Read More »
Every PRP journey begins with a symptom or a sign. Days, weeks, months or years may pass before there is a diagnosis and we hear a healthcare professional utter the words pityriasis rubra pilaris. The onset of PRP can be as small as a red spot (size of a dime) on a forehead. Or, it can appear
PRP 101 — Our Journey… Read More »